MS101.Me for Multiple Sclerosis
The most mature of the LEAP mobile health program is MS101.Me--a mobile app and companion website for multiple sclerosis (MS).
The goal of the MS101.Me platform is to help patients learn about their personal experience with MS symptoms, stress factors, medication dosing, and self care activities like exercise and sleep.
The mobile and desktop tools make it easy to:
Log symptoms, med doses, and stress factors in only 1 minute a day
Record symptom severity for pain, fatigue, mobility, and "brain fog"
Easily integrate a wearable sensor to track steps per day and sleep
Provide insights into possible symptom triggers like: sleep and weather
With the help of easy to understand summary reports, MS101.Me hopes to improve patient and neurologist shared decision making.
The goal is to drive action-oriented conversations between the patient, and the neurology team. For example, if an MS101.Me summary report indicated that a medication did not provide the expected level of benefit, then this report could prompt the patient to initiate a discussion with the neurologist about other medication options. For more details see www.MS101.me.
PD101.Me for Parkinson's Disease
In addition to tackling MS, the LEAP-NeuroMedicine divison is also addressing Parkinson's Disease (PD).
Recognizing the significant challenges of managing PD symptoms that change over time, the PD101.Me platform is intended to help assess the need for medication changes.
The PD101.Me mobile technology--including touch screen navigation--is specifically designed for people with motor disorders. The overall goal is to help patients learn about their personal experience with PD so that therapeutic adjustments can be based on more specific patient reported outcomes.
Daily tracking of PD medication dosing and symptoms---both motor and non-motor such as psychosis is performed with simple point and click gestures. The technology is also being developed in a manner to allow caregivers to provide their own reports. The goal for PD101.Me is to supply patients and caregivers with the most relevant reports and drive action-oriented conversations with the neurologist.
For example, a patient or caregiver could just as easily report the frequency of motor (e.g tremor) or non-motor (e.g. visual hallucinations) symptoms in conjunction with the current dosing of PD medications. These reports may help quantify the need to change dose or even the prescribed medication.
PH101.Me for Pulmonary Hypertension
For many serious, chronic cardiovascular conditions there is an important relationship between symptoms, exercise capacity, and drug therapy. Pulmonary hypertension is one of those conditions. The PH101.Me mobile technology platforms was developed to assist people with pulmonary hypertension to better manage their condition including monitoring their episodes of shortness of breath (dyspnea).
The use of wearable activity trackers are integrated into a smartphone mobile tool allowing patients to report symptoms quickly and easily on a daily basis. These data are invaluable to the cardiologist or pulmonologist who must assess the level of disease progression and the performance of therapeutic treatments.
With easy to understand PH101.me summary reports, patients with pulmonary hypertension and their clinicians can have a more informed and action-oriented discussion of treatment options.
Mobile Health Programs
LEAP-NeuroMedicine is the Foundation's division focused on serious, neurological conditions.
The LEAP-CardioMedicine division targets serious chronic, cardiovascular diseases